# Women With ALS Find Joy in Community

> Young women with ALS create joy through shared support at retreat.
- Title: Women With ALS Find Joy in Community · Popsugar | Shortify
- Summary: Young women with ALS create joy through shared support at retreat. 41 women with ALS celebrated community, drag shows, and friendship at Her ALS Story…
- Keywords: her als story, young women, als diagnosis, retreat, wheelchair races, drag shows, beach days, dance parties, tracheostomy, feeding tube, dissolvable paper, grief
- Source: Popsugar — https://popsugar.com/health/young-women-with-als-retreat-49484819
- Author: Chandler Plante
- Published: 2026-10-23T17:00:02+00:00
- Read time: 1 min
- Topics: her als story, young women, als diagnosis, retreat, wheelchair races, drag shows, beach days, dance parties, tracheostomy, feeding tube, dissolvable paper, grief
## Brooke Eby's ALS Journey
Brooke Eby received ALS diagnosis in early 30s and found joy through community support.

> Guys! If I've taught you anything, it's that ALS affects hot people, too
## Her ALS Story Retreat
Her ALS Story held largest gathering of young women with ALS at Cape Cod retreat.
## 41 Women Attend Retreat
41 women with ALS participated in Warrior Weekend retreat for comfort and community.
## No More Explaining
Women no longer need to explain their lives to others at retreat.

> I always say, 'No new friends,' because I don't like to have to explain what happened to me
## Tracheostomy Support
Community provides help with tracheostomy and feeding tube needs.
## Wheelchair Dance Party
Women danced with help at drag show and beach party despite mobility challenges.

> Everyone was dancing and partying, [but] I really can't move my arms
## Grief and Healing
Women honored lost friends through dissolvable paper memories at beach.

> Feeling like they're a small part of the big ocean is how I feel about them in the group
## Reframing ALS Narrative
Her ALS Story challenges ALS being associated with older white men.

> I [had] three months before my wedding, I was five years into a career as a nurse practitioner
## Community Support
Women provide emotional support and practical help during tough times.

> These women deserve all my fight
## Her ALS Story Impact
Her ALS Story helps young women find joy despite ALS diagnosis.
## Key takeaway

41 women with ALS celebrated community, drag shows, and friendship at Her ALS Story retreat.