Women With ALS Find Joy in Community

Brooke Eby's ALS Journey

Brooke Eby received ALS diagnosis in early 30s and found joy through community support.

“Guys! If I've taught you anything, it's that ALS affects hot people, too”

Her ALS Story Retreat

Her ALS Story held largest gathering of young women with ALS at Cape Cod retreat.

41 Women Attend Retreat

41 women with ALS participated in Warrior Weekend retreat for comfort and community.

No More Explaining

Women no longer need to explain their lives to others at retreat.

“I always say, 'No new friends,' because I don't like to have to explain what happened to me”

Tracheostomy Support

Community provides help with tracheostomy and feeding tube needs.

Wheelchair Dance Party

Women danced with help at drag show and beach party despite mobility challenges.

“Everyone was dancing and partying, [but] I really can't move my arms”

Grief and Healing

Women honored lost friends through dissolvable paper memories at beach.

“Feeling like they're a small part of the big ocean is how I feel about them in the group”

Reframing ALS Narrative

Her ALS Story challenges ALS being associated with older white men.

“I [had] three months before my wedding, I was five years into a career as a nurse practitioner”

Community Support

Women provide emotional support and practical help during tough times.

“These women deserve all my fight”

Her ALS Story Impact

Her ALS Story helps young women find joy despite ALS diagnosis.